A week for what?

A week at the Mayo Clinic, and I am not impressed. Clay has some issues with rage fits or seizure type things that seem strongly related to his learning problems. But the problem with doctors is that they don't believe what they don't see.

Day 1 was psyc testing. Clay was very well behaved that day. He did show some resistance to challenging tasks- which helps a little. So the psyc says there could be some underlining performance anxiety and suggested we use a different curriculum for education.

The next day with met with a psychiatrist. He said Clay seems perfectly adjusted and we are doing a great job with him. Again Clay was in a great mood that day. He suggested we use a sticker chart (like a mom of 6 never thought of that!?)

Then Clay got tired of it all and his mood changed. By the meeting with the Sleep Doctor he refused to open his mouth or let her even let her listen to his heart, so his sleep study was canceled. She also didn't seem to know how to handle him at all.

Our last meeting was with the neurologist. He didn't do a careful job reading Clay's file (neither did the sleep Dr) and was surprised Clay was showing good eye contact, because he thought Clay had a diagnosis of autism. Then I explained he was tested for autism and wasn't autistic. But that he had memory challenges and has a Jekyll and Hyde issue in his behavior. He did a little reflex check. Said it looked like depression to him, bad enough to medicate, and referred him back to psyc. But he did agree to do a bunch of blood screenings, just to rule out those things.

The blood draw tech was impressive. He managed to get Clay happy to cooperate by explaining exactly what was going to happen.

Going forward (besides changing his curriculum, which I already decided to do), I think we are going to have to catch videos of his fits so the silly doctors can see what we are talking about. Personally, I would really like Clay to get an EEG, with some stimulation of stress to see what happens in that brain when he is hulking.

This looks like a possible issue- http://www.thebarrow.org/Neurological_Services/Brain_Tumor_Center/Hypothalamic_Hamartomas/203773
In which case we would like an MRI please.