mayo day 3, 6:58 am

Ian has slept the night with some pain meds around 4 am (when they gave the antibiotic). He just woke up at 6:20 crying and hot. His fever is running around 100. So he got more morphine and tylonal. He has just went back to sleep. Late last night, when his fever returned he started complaining that he was "sweaty". I asked him how else he felt. He said "warm".

10pm

Well,
Ian is running a fever, so on top of the morphine and the medicine to help him deal with the queeziness of the morphine they are giving him tylonal, but at least the tylonal is by mouth.

I went back to the hotel with the boys but Ian wanted me with him when he woke up, so here I am again. But this time I plan to stay the night.

Meanwhile I seemed to have misplaced my purse. There has been no activity on our cards yet, so I am hoping we will find it soon- maybe under something. Anyways...that is what I know now. Ian is watching a movie and I plan to get some bedding and read away. Tomorrow I can take time to nap at the hotel, since sleeping in the hospital is challenging at best.

4:30

Well, Ian is now in the room and is snoring softly. He has less tubes and wires on him then he did the first time he got a hospital room here. He is under morphine to help his pain and make him sleep-a lot. As far as we know there are no restrictions on his food- so he may or may not eat today depending on what he is awake for and/or what he feels like.

3:20

We just spent 10 minutes trying to get my computer to connect to the net again. The surgery is done, the accomplished what they had planned on accomplishing. The Doctor said his internal anatomy is a little weird. The spinal fluid sack was not just a spinal fluid sack but held a cyst of the spinal cord it's self. The bottom of the spinal cord did not form normally, but made a ball and the fluid sack was around that. He cut it above the ball and the spinal cord went back up near where it is supposed to be.

It appears as if the nerves to his bowels and bladder did not form, for they usually come off the very bottom of the spinal cord. However, even though this is being said by the doctors, does not mean he has not slowly been acquiring function through some other, maybe secondary nerves, as has been discovered in the cases of quadriplegics.

My personal research and connections give me much hope for his continued acquisition of function, meanwhile the surgery was successful in accomplishing all of it's designs. Ian should be coming up from recovery in 15-30 min.

2:30

the main part of surgery is done and they are starting to close.

1:42

Everything is going well. Everything is going well. We will be hearing more....soon?

12:30

I received the call. They cut him at 12:30pm. We should be getting an update every 1-2 hours while they proceed.